Category Archives: Health Issues

This Comic Nails the Difference Between Chronic Fatigue and Just Being ‘Tired’ . . .

‘The Mighty’ is a digital health community, created to empower and connect people facing health challenges and disabilities, and I came across it by accident – but found so much relevant to my own life, that I signed on for regular emails.

The comic strip, further below this, is one such link sent to me to read, and it reflected my life so much, that I really wanted to comment on it here.

The comic strip shows exactly what happens to me every time I try to be ‘normal’, and meet up with a friend for lunch, or try to be a little independent, and attempt to do small chores for myself, etc. It shows the difference in energy used between a healthy person, and someone suffering with an auto-immune illness, and I felt it showed the difference very well.

It really is so very hard to explain to someone who isn’t suffering from a plethora of auto-immune illnesses, just what life is like for us who do 😦

Link to website: The Mighty.com – Comic Strip that explains Chronic Fatigue Syndrome/ME

In honor of myalgic encephalomyelitis (ME)/chronic fatigue syndrome awareness day on May 12, I thought I’d make a comic. When I decided to do this I didn’t quite realize just how long it would take and how many spoons, but hopefully it’s worth it.

To read a transcript, head here.

Introducing Maddie, a girl with ME, who in this episode, “Energy and Exertion,” is meeting her friend, “Normal” Nancy, for coffee.

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This blog was originally published on Laura’s Pen

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Just like Maddie in the comic, I suffer with ME, but I also have Fibromyalgia, Lupus, Arthritis, and a plethora of other health problems – plus 2 blood disorders that are really making my already complex health issues even worse. This means, unfortunately, that the physical, and mental, side effects of each of them, affect me even more than just the one problem does Maddie 😦

Like Maddie, I try my best to occasionally meet up with a friend for lunch, or to go into town – even if it’s only to get money out – although I’m unable to travel by Bus, as it became a very painful – and totally exhausting – thing to do years ago.

I don’t get out as much as I’d love to do, but as much as my body allows me to 😦

I can only manage this, though, if a good friend picks me up in her car, and drives me around from place to place – so I can manage to do what I must, without having to constantly walk too far. Then, when I’ve either finished my list, or just run out of energy, she then drives me home again, making sure I get myself, and anything I’ve bought, safely into the house.

If I absolutely MUST go into town for something important, and my friends are unavailable, then I’ll catch a taxi, which I arrange to return for me where I was dropped off, an hour later (because an hour is my absolute limit, especially when on my own)!

If I have to use a taxi, once I get there, I know I will only be able to manage one or two things that I absolutely HAVE to do – plus, I also have to plan the shortest route possible between places I need to visit before my energy runs out, and I need to get back home before I fall down exhausted – so I only do what I absolutely MUST do 😦

I often need to get cash out from my post office which, fortunately, is in the same building as the food shop, where I often need to go to get the items I’ve forgotten to order with my home delivery! (oh, for a brain that didn’t keep forgetting things!). I can normally do this before needing to get home but, if I happen to meet a friend while I’m in town, then I often have to choose between the shopping, or stopping to chat with the friend, as it’s almost always impossible for me to do both – especially if I want to save enough energy to get back home safely, where I can then collapse back into bed, where I’ll spend most of the next few days desperately trying to recover enough to look after myself properly 😦

My life is no different to many thousands of others, here in the UK – and around the world – whose lives are affected so badly by chronic illness, and we all, in one way or another, find it difficult to get across to others who are fit and healthy – or who are physically disabled in a way that doesn’t affect their energy values – the way in which our lives are affected by these awful autoimmune-based illnesses that we have to cope with every single day of our lives.

But I think that the worst aspect of all of this, is the thought that there are no cures for any of the auto-immune problems that so many of us suffer with, especially as they have made it impossible for me to work! This means that I have to rely on Welfare to keep me fed, and homed – in almost every aspect of my life – by a government who are doing everything they can to make life for people like myself a living nightmare 😦

To make matters worse, I lost my wonderful husband in March, and I had to spend the next 3 months going through all the worst aspects of this, while trying to apply for the benefits I needed to live on – it took 12 weeks before they sorted out what I was entitled to and, if it wasn’t for good and kind friends, I don’t know how I would have managed, financially, or emotionally! 😦

It certainly didn’t make my health any easier to cope with when, along with the grief suffered with then – and now – I also had to fill in so many forms, and battle with the DWP to get what I needed to live on – but that’s another story, I guess 😦      

 

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Filed under Benefits, Choices, Chronic Ill Health, Disability Issues, Health Issues, Ill Health, UK Government, Welfare, Welfare Cuts

Video: doctor speaks powerfully – “the humanity is being sucked out of our NHS” . . .

Lauren Gavaghan is a doctor, psychiatrist and well-known NHS campaigner. On Thursday evening she spoke movingly to a mass gathering of Labour NHS campaigners about the suffering and beauty she has seen in ten years of service in the NHS – and the vampiric effect of Tory government.

What she said was powerful, inspiring – and terrifying. She spoke of huge shortages, of the disrespect of the government toward patients and staff – and of the unnecessary and undignified deaths the under-resourcing of the NHS has caused. And she summed it up in one haunting phrase:

” The humanity is being sucked out of our NHS. ”

This video brings home the preciousness of the National Health Service that Labour built, the disaster imposed on it – and the awful prospect of its loss. Please watch and share:

Please click the link below, to watch the video of her speech, posted online by The Swawkbox, today:
Doctor speaks powerfully: ‘The Humanity is being sucked out of our NHS’

 

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The UK government was just found to have violated disabled people’s ‘basic’ human rights. Again . . .

 On Wednesday 24 January an international body reported that the UK government had breached the legal human rights of sick and disabled people. This is now the fifth such report to state this in just 20 months.

The ECSR

A report [pdf “ECSR conclusions for 2017 – UK”] from the European Committee of Social Rights (part of the Council of Europe) details whether the UK government was meeting its legal obligations under the European Social Charter The UK signed up to the Charter in July 1996 [pdf, p3]. It covers fundamentalhuman rights, including those related to employment, housing, health, education, social protection and welfare.

The report covered [pdf, p3] the years 2012 to 2015. And overall, it found the UK government was breaching its legal obligations in two areas.

Failing on welfare

The first breach was of Article 12, the right to social security. The committee found [pdf, p19-22] that many welfare benefits – including Employment and Support Allowance (ESA) and Jobseeker’s Allowance (JSA) – were “manifestly inadequate”. That is, people were not getting enough money to live on and were being left in poverty.

The committee made a point [pdf, p19] of noting that in response to a previous report where it had raised this issue, the UK government:

contests this finding… arguing that the benefit rates are considered in isolation, without taking into account the safety net of other benefits and credits available.

But the committee once again disagreed. It said [pdf, p20] that all the benefits mentioned left people below the poverty line, even with “other benefits and credits”. Therefore, this is an automatic breach of the Charter [pdf, p20].

 

 

Please click on the link below to read the complete article, posted by The Canary:

The UK government was just found to have violated disabled people’s ‘basic’ human rights. Again. ( by Steve Topple)

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‘Deprivation of Liberty’ deaths soar by 56% in a single year . . .

The SKWAWKBOX reported this week on the shocking tripling of deaths – from 83 in 2011 to 252 in 2016 – among people detained under the Mental Health Act, as mental health and police services have been degraded under Tory government.

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A further shocking phenomenon is revealed by the government’s Coroners’ Statistics: an increase of fifty-six percent in the number of deaths under ‘Deprivation of Liberty’ (DoL) authorisations.

The Mental Capacity Act (MCA) allows for organisations – hospitals, care homes and others – to apply for authorisation to deprive or restrict a person’s liberty on the grounds of their mental capacity if it is considered necessary for their safety. ‘Deprivation of Liberty Safeguards‘ (DoLS) exist to ensure – in theory – that a person is not unnecessarily deprived of any more of their liberty than is absolutely necessary for their safety. These only apply in England and Wales.

To read the rest of this story, please press this link:

Deprivation of Liberty deaths soar . . .

 

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Conservative MPs accuse citizens of ‘scaremongering stories’ about experiences of Universal Credit.

Once again, Kitty Jones hits the nail on the head with this post:

via Conservative MPs accuse citizens of ‘scaremongering stories’ about experiences of Universal Credit.

I really don’t understand how so very many ordinary working – and non-working – people are being hoodwinked into voting for a party that are idealogically driven, and are all for the Elitist Rich?

This is a party who are driving poverty levels in the UK into the ground – to levels not seen since Victorian times!

The constant eroding of our Human Rights is barely being spoken of.

Our Economy is rapidly sliding down the drain, along with any of the Industries that had made the UK a leader in the past, and which are, once again, desperately needed, if we’re to build our country’s economic future on a firmer footing than the tory Tax Haven ideals.

The gap between the Very Rich, and the (so-called) undeserving Poor, has never been so wide.

Yet, where are the outcries about the gradual attrition of our hard-won Democracy – fought for by our grandparents, and their parents and grandparents before them – and bought on the backs of loss and pain?

All we need now, is for the terrors of the Work House to be brought back once again – something our forebears fought long and hard to abolish in the first place – and then we’ll see the completion of our lives being deliberately regressed back in time – where the Rich Elite have every bit of power, and the poor work for a pittance – and still starve!

Considering the thousands upon thousands of unnecessary deaths, due to the Tory-led DWP’s ideological attritions, which have created an ever-increasing result of Homelessness, which then leads on to Starvation, Chronic Ill Health, Disability, and then death, to so very many citizens of the UK – and all of this taking place under a very silent Mainstream Media (unless they are screaming that their Tory paymasters are being lied about, of course)!

These are things that were first introduced by the Tory-Lite Blairites, thus heralding the decomposition of an effective Opposition Party, and making it even harder for this new Jeremy Corbyn-led Labour Party, to fight against this pernicious, and machiavellian,  disease of tory greed and corruption!

The fact that, since the tories took power, and insisted on introducing their ‘made to fail’ Universal Credit,  it shows that we really have already reached the pits of despondency and despair!

So much for ‘scaremongering’ 😦

 

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The Universal Credit Row, and our Basic Human Rights . . .

If I’ve read this article right, then the government are preparing to roll out a Universal Credit system that affects almost all of our basic Human Rights.
If this is so, why isn’t something being done about it at the highest levels, before even more thousands of people, including children, are driven to homelessness, huge debt, and penury?

Please follow the link below, and read the article, and see if you come to the same conclusions that I did?

The Universal Credit Row and our Basic Human Rights

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The Hellish Ordeal of the DWP Experience . . .

I’v just read an article in the Morning Star, and it really reflects the way I felt, and behaved, while going through my changeover from DLA to PIP at the beginning of this year.

To add to the stress and strains, along with paranoia, I was also grieving, which made my mental health so bad, I completely stopped the crochet I love doing, which helps to keep me as relaxed as my pain allows, both physically and mentally.

It took a good 8 months, from the start of my assessment period, for me to get back a, rather fragile at times, peace.

Do follow this link to the article, and see if you’ve had the same experience, too:

The Hellish Ordeal of the DWP Experience

 

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