Category Archives: UK Government

This Comic Nails the Difference Between Chronic Fatigue and Just Being ‘Tired’ . . .

‘The Mighty’ is a digital health community, created to empower and connect people facing health challenges and disabilities, and I came across it by accident – but found so much relevant to my own life, that I signed on for regular emails.

The comic strip, further below this, is one such link sent to me to read, and it reflected my life so much, that I really wanted to comment on it here.

The comic strip shows exactly what happens to me every time I try to be ‘normal’, and meet up with a friend for lunch, or try to be a little independent, and attempt to do small chores for myself, etc. It shows the difference in energy used between a healthy person, and someone suffering with an auto-immune illness, and I felt it showed the difference very well.

It really is so very hard to explain to someone who isn’t suffering from a plethora of auto-immune illnesses, just what life is like for us who do 😦

Link to website: The Mighty.com – Comic Strip that explains Chronic Fatigue Syndrome/ME

In honor of myalgic encephalomyelitis (ME)/chronic fatigue syndrome awareness day on May 12, I thought I’d make a comic. When I decided to do this I didn’t quite realize just how long it would take and how many spoons, but hopefully it’s worth it.

To read a transcript, head here.

Introducing Maddie, a girl with ME, who in this episode, “Energy and Exertion,” is meeting her friend, “Normal” Nancy, for coffee.

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This blog was originally published on Laura’s Pen

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Just like Maddie in the comic, I suffer with ME, but I also have Fibromyalgia, Lupus, Arthritis, and a plethora of other health problems – plus 2 blood disorders that are really making my already complex health issues even worse. This means, unfortunately, that the physical, and mental, side effects of each of them, affect me even more than just the one problem does Maddie 😦

Like Maddie, I try my best to occasionally meet up with a friend for lunch, or to go into town – even if it’s only to get money out – although I’m unable to travel by Bus, as it became a very painful – and totally exhausting – thing to do years ago.

I don’t get out as much as I’d love to do, but as much as my body allows me to 😦

I can only manage this, though, if a good friend picks me up in her car, and drives me around from place to place – so I can manage to do what I must, without having to constantly walk too far. Then, when I’ve either finished my list, or just run out of energy, she then drives me home again, making sure I get myself, and anything I’ve bought, safely into the house.

If I absolutely MUST go into town for something important, and my friends are unavailable, then I’ll catch a taxi, which I arrange to return for me where I was dropped off, an hour later (because an hour is my absolute limit, especially when on my own)!

If I have to use a taxi, once I get there, I know I will only be able to manage one or two things that I absolutely HAVE to do – plus, I also have to plan the shortest route possible between places I need to visit before my energy runs out, and I need to get back home before I fall down exhausted – so I only do what I absolutely MUST do 😦

I often need to get cash out from my post office which, fortunately, is in the same building as the food shop, where I often need to go to get the items I’ve forgotten to order with my home delivery! (oh, for a brain that didn’t keep forgetting things!). I can normally do this before needing to get home but, if I happen to meet a friend while I’m in town, then I often have to choose between the shopping, or stopping to chat with the friend, as it’s almost always impossible for me to do both – especially if I want to save enough energy to get back home safely, where I can then collapse back into bed, where I’ll spend most of the next few days desperately trying to recover enough to look after myself properly 😦

My life is no different to many thousands of others, here in the UK – and around the world – whose lives are affected so badly by chronic illness, and we all, in one way or another, find it difficult to get across to others who are fit and healthy – or who are physically disabled in a way that doesn’t affect their energy values – the way in which our lives are affected by these awful autoimmune-based illnesses that we have to cope with every single day of our lives.

But I think that the worst aspect of all of this, is the thought that there are no cures for any of the auto-immune problems that so many of us suffer with, especially as they have made it impossible for me to work! This means that I have to rely on Welfare to keep me fed, and homed – in almost every aspect of my life – by a government who are doing everything they can to make life for people like myself a living nightmare 😦

To make matters worse, I lost my wonderful husband in March, and I had to spend the next 3 months going through all the worst aspects of this, while trying to apply for the benefits I needed to live on – it took 12 weeks before they sorted out what I was entitled to and, if it wasn’t for good and kind friends, I don’t know how I would have managed, financially, or emotionally! 😦

It certainly didn’t make my health any easier to cope with when, along with the grief suffered with then – and now – I also had to fill in so many forms, and battle with the DWP to get what I needed to live on – but that’s another story, I guess 😦      

 

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Filed under Benefits, Choices, Chronic Ill Health, Disability Issues, Health Issues, Ill Health, UK Government, Welfare, Welfare Cuts

Disabled people’s response to PIP review: STARK TERROR . . .

Judge Death: Esther McVey’s Department for Work and Pensions will evaluate the PIP entitlement of people who have died since claiming – including some whose claims were refused altogether. Fat lot of good it’ll do them [Image: PA].

Perhaps Esther McVey thought disabled people would be grateful when she announced that every claim for Personal Independence Payment would be reviewed, because the government was under-paying people with mental health problems. If so, SHE THOUGHT WRONG.

In fact, the 1.6 million PIP recipients whose claims are to be reviewed have greeted the announcement, not with gratitude, but with terror.

Vox Political commenter ‘Florence’ explains:

 

The decision to review all cases had caused alarm among the PIP base; we see yet another opportunity to be denied benefits. The DWP are not trusted, and the decision to review all 1.6 million claims will undoubtedly have some unpleasant side effects.

While [the] opportunity to gain extra data on the appalling Human Rights situation is welcomed, the simple fact we are all being put through a desk-based review before our existing review date just fills us all with dread.

To read the full article, posted today by Mike Silvier, of VOX POLITICAL, please click on the link below:

Disabled People’s response to PPIP Review: STARK TERROR.

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Video: doctor speaks powerfully – “the humanity is being sucked out of our NHS” . . .

Lauren Gavaghan is a doctor, psychiatrist and well-known NHS campaigner. On Thursday evening she spoke movingly to a mass gathering of Labour NHS campaigners about the suffering and beauty she has seen in ten years of service in the NHS – and the vampiric effect of Tory government.

What she said was powerful, inspiring – and terrifying. She spoke of huge shortages, of the disrespect of the government toward patients and staff – and of the unnecessary and undignified deaths the under-resourcing of the NHS has caused. And she summed it up in one haunting phrase:

” The humanity is being sucked out of our NHS. ”

This video brings home the preciousness of the National Health Service that Labour built, the disaster imposed on it – and the awful prospect of its loss. Please watch and share:

Please click the link below, to watch the video of her speech, posted online by The Swawkbox, today:
Doctor speaks powerfully: ‘The Humanity is being sucked out of our NHS’

 

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Filed under 70th Anniversary of the NHS, Austerity, Budget Cuts, Changes, Choices, Collapse of the NHS, Death, Degraded Public Services, Deprivation, Divide and Rule, Economics, Funding Cuts, Government Spending, Health Issues, Hospital Waiting Lists, Human Rights, Humanity, Ideology, Impoverishment, Memories, NHS, Politics, Privatisation of Public Resources, Starvation of Resources, Tory Cuts, Tragedy, UK Government, Welfare Cuts

Figures show: No other govt has invested less additional cash in NHS than this . . .

The government’s fall-back when challenged over its failure on the NHS, as worse winter crisis follows winter crisis, is to fall back on its claim that it has ‘put more money into the NHS’ and is spending ‘record amounts’.

Given that any increase represents a new record, the claim is meaningless – the Tories have increased health budgets by far less than the last Labour government and at a completely inadequate level for the needs of the service, as the ongoing A&E crisis and even a recent BBC report demonstrate.

The public is beginning to get wise to the dodge, as the recent reception faced a Tory Minister on a BBC Question Time programme in a Tory heartland demonstrated.

But a far greater increase in awareness is needed – and as a picture paints a thousand words, this may be helpful:

nhs spend.png

 

Please click the following link to read the rest of the article, posted by The Swawkbox today:

Figures show: No other Government have invested less additional Cash in the NHS than This one!

 

 

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Filed under Austerity, Budgets, Choices, Collapse of the NHS, Degraded Public Services, Deprivation, Despair, Economy, Funding Cuts, Government Spending, Human Rights, Ideology, Impoverishment, NHS, Politics, Starvation of Resources, Theresa May, Tory Cuts, UK Government, Welfare

The UK government was just found to have violated disabled people’s ‘basic’ human rights. Again . . .

 On Wednesday 24 January an international body reported that the UK government had breached the legal human rights of sick and disabled people. This is now the fifth such report to state this in just 20 months.

The ECSR

A report [pdf “ECSR conclusions for 2017 – UK”] from the European Committee of Social Rights (part of the Council of Europe) details whether the UK government was meeting its legal obligations under the European Social Charter The UK signed up to the Charter in July 1996 [pdf, p3]. It covers fundamentalhuman rights, including those related to employment, housing, health, education, social protection and welfare.

The report covered [pdf, p3] the years 2012 to 2015. And overall, it found the UK government was breaching its legal obligations in two areas.

Failing on welfare

The first breach was of Article 12, the right to social security. The committee found [pdf, p19-22] that many welfare benefits – including Employment and Support Allowance (ESA) and Jobseeker’s Allowance (JSA) – were “manifestly inadequate”. That is, people were not getting enough money to live on and were being left in poverty.

The committee made a point [pdf, p19] of noting that in response to a previous report where it had raised this issue, the UK government:

contests this finding… arguing that the benefit rates are considered in isolation, without taking into account the safety net of other benefits and credits available.

But the committee once again disagreed. It said [pdf, p20] that all the benefits mentioned left people below the poverty line, even with “other benefits and credits”. Therefore, this is an automatic breach of the Charter [pdf, p20].

 

 

Please click on the link below to read the complete article, posted by The Canary:

The UK government was just found to have violated disabled people’s ‘basic’ human rights. Again. ( by Steve Topple)

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